True Lifeline
Last week I blogged about letting go and trusting God, and how hard that is when the uncertain path includes loved ones. (Let Go, Trust God). Lessa's doctor instructed me not to supplement her intravenously with fluids even if she has major fluid losses. (I was allowed to attempt standard hydrating oral solutions though she has a limit to how much she can tolerate). If necessary, I would bring her into his office or the ER for assessment.
This week we saw her specialist.....the plan is to remove her intravenous catheter line in early January entirely. Yikes!
It's a weird feeling. I have a mixture of anticipated relief and anticipated helplessness.
I've waited for this decision for almost three years. We have indications she'll be okay. She's made progress. We've survived two fluid meltdowns in the last month and we were able to keep her out of the ER. And once the line is out, I look forward to the assurance that any random fever is more likely a normal infection rather than a serious and dangerous blood infection .
However, our journey does not end once the line is out. Lessa (and our family) still have a long road ahead. Her body is not the same as it was before (afterall, her anatomy is altered after having two major surgeries ). She has yet to regain the ability to process more advanced formulas. All of her GI idiosyncrasies don't change with the line removal. With all of these factors, unpredictable fluid losses is the only certainty.
So, I pray. I wait for God's assuring voice. I wait for God's instructions when an emergency arises. I wait for Him to stir up the intuition, the knowledge, the experiences He has given me the last several years and use it to navigate the next bend in the road and what pops out just around it.
And though this catheter was her lifeline for three years, and gave me some sense of control over her situation, God is reminding me that He is ultimately her lifeline and that He is in control and He will guide me as we navigate this next journey together.
Your prayers for Lessa are appreciated.
Blessings,
jane
This week we saw her specialist.....the plan is to remove her intravenous catheter line in early January entirely. Yikes!
It's a weird feeling. I have a mixture of anticipated relief and anticipated helplessness.
I've waited for this decision for almost three years. We have indications she'll be okay. She's made progress. We've survived two fluid meltdowns in the last month and we were able to keep her out of the ER. And once the line is out, I look forward to the assurance that any random fever is more likely a normal infection rather than a serious and dangerous blood infection .
However, our journey does not end once the line is out. Lessa (and our family) still have a long road ahead. Her body is not the same as it was before (afterall, her anatomy is altered after having two major surgeries ). She has yet to regain the ability to process more advanced formulas. All of her GI idiosyncrasies don't change with the line removal. With all of these factors, unpredictable fluid losses is the only certainty.
So, I pray. I wait for God's assuring voice. I wait for God's instructions when an emergency arises. I wait for Him to stir up the intuition, the knowledge, the experiences He has given me the last several years and use it to navigate the next bend in the road and what pops out just around it.
And though this catheter was her lifeline for three years, and gave me some sense of control over her situation, God is reminding me that He is ultimately her lifeline and that He is in control and He will guide me as we navigate this next journey together.
Your prayers for Lessa are appreciated.
Blessings,
jane
posted by jane at
12:11 PM
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